December 29, 2013

Kissing Ketosis Goodbye?

Around that time that Jade's seizures were at their worst, I wrote this entry on Finding Strength.  (Go ahead and read it.  This post will be waiting for you when you get back.)

That was a little over five years ago.  Five long years and just a little before we started Jade on the ketogenic diet.  Thank goodness we were able to find the strength to get us through the storms because the good times have arrived!

Long-time readers of Michael's Meanderings will know that we achieved seizure-freedom for Jade a few years ago and last September she had a squeaky-clean EEG.  We owe so much to the ketogenic diet and to the team at BC Children's Hospital who helped us to administer it - but gosh darn it the diet is a pain in the butt (still better than the seizures, though) and after so many years of having to kowtow to the diet's demands, we dreamed of a day when we would be free to prepare a meal without having to weigh every ingredient to the tenth of a gram, or plan our every waking moment around Jade's snacks and meals and supplements.

Well, I am pleased to report that the day has come.  Actually, it has been several weeks now, but it takes a while to do the wean off the diet and I didn't want to jinx anything.  Jade is out of ketosis and appears to be thriving.

Here she is, being allowed to eat as much protein as she wants for the first time in five years.

I'm tickled by how much she enjoys being able to eat new foods and by how much she enjoys eating as much of it as she wants.  She has so much more energy! She's growing (She's very short compared to her classmates: A "side effect" of the diet)!  I'm also tickled that we don't have to use the scale anymore! She can eat when she's hungry and isn't constantly begging for food! We don't have to prepare multiple meals at supper! We don't have to lug her meals around with us or prepare them in advance!  Oh, the freedom!

So much freedom, thats we're going to Disneyland! I kid you not!  While possible on the ketogenic diet, the logistics of traveling from Whitehorse to Disneyland while administering the diet sounded as reasonable as packing the car for a weekend trip to Mars.

Now, we're not out of the woods yet.  Yes, she's off the diet.  Yes, she appears to be doing well, but that doesn't mean there aren't things going on in that noodle of hers that we can't see.  We'll be going back to BC Kids in February for another EEG and, hopefully, everything will look great.  If not, well, we'll cross that bridge when we come to it.  For now, we'll revel in the glow of what feels like a fairy tale ending and hope that there's no sequel.

Halia's 10 Helpful Tips for Good Table Etiquette

This evening, we had a discussion on good table manners.  Halia, age 5, had these helpful tips to share:
  1. Don't hum.
  2. Don't pick your nose.
  3. Don't touch your eye.
  4. Don't touch your bum or your vulva or your penis.
  5. Don't suck on your Kleenex.  Even if it's tasty.  Mine is pretty tasty, actually.
  6. Don't stick your fingers in your cup.
  7. Don't mix food with your drink.
  8. Don't eat the ceiling.
  9. Don't eat like {name of friend}. Grabs fork with both hands and begins shovelling food into her mouth.
  10. Don't sit in a "W". Kneels and splays both feet out to the side so her legs make a "W" shape.
Should I ever have the opportunity to dine with the Queen, I feel that Halia's advice will serve me well.

November 11, 2013

She is...

She's stubborn and determined and imaginative and playful and clueless and curious and is always experimenting with the world around her.  She's friendly and helpful and and rambunctious and smart and when she isn't driving me crazy, she makes me laugh my head off.  She has a giggle that pierces the ears and warms the soul.

She's Halia, and today she's five.

October 12, 2013

Anniversary Math

1 + 1 = 11?

1 person plus 1 person equals 11 happy years, that is! Happy Anniversary to my wonderful wife!

September 27, 2013

Pictures from my iPod

My iPod went missing a long, long time ago.  I thought I'd lost it in the snow somewhere.  It was eventually discovered under the cushions of our old green couch.

I don't often carry a proper camera with me anymore, so it's nice to have the iPod to take pictures of things that tickle my funny bone or make me go "Hmm...".  Here are a few pictures from my previously-missing iPod that had me doing just that.

Whatever you do, don't pluck it up.

Kids love the the West Edmonton Mall's Fantasyland Hotel, with its fun (and tiny) theme rooms.  That's why its the perfect place to hold a National Child Maltreatment Symposium where they discuss... how to mistreat children?

I took this picture in St. John's, Newfoundland.  I'm certain they're the inspiration for this.

At one time, it was "No Skate Boarding Permitted".  Now?  Go right ahead!

It's "The Trooperdore"!  Canada's Armed Forces calls in this musically-trained soldier with his military-grade guitar when conventional tactics are ineffective.  What is this brave soldier's name?  Is he a corporal? A general?  No.  He's only a private.  World, meet the greatest guitar-wielding soldier of all time: Private Performance.

Believe it or not, this is a picture of a poster hanging in a local high school.  It is a poster about how to survive a zombie apocalypse.  It's nice to know our kids are getting an education that prepares them for the future!