October 24, 2009

It will get better.

Last year, about this time, things were not good. Not good at all.

Jade was having constant seizures and Fawn and I were at the end of our ropes - and near the end of our hopes. We were exhausted, eating poorly, and always on-guard. What hope we had was because of the ketogenic diet. We would soon be taking Jade to Vancouver to get her on the diet.

The night before the Jade's induction, a very pregnant Fawn woke up with intense abdominal pain. It was so bad that I had to call an ambulance, but couldn't follow her to the hospital. I needed to stay with Jade.

Lying awake on that couch, feeling absolutely exhausted but completely unable to sleep, waiting for a call from the hospital, wondering if my wife and unborn child were going to be alright, and wondering if my first child would ever be more than a constantly-seizing, heavily-medicated shell, was the absolute lowest point in my entire life. I wondered how things could possibly get worse, knowing deep in my heart that they could.

But I never gave up. Fawn never gave up. Jade never gave up.

With a lot of work, teamwork, research, determination, winging-it, trial and error, hope, and support from family, friends, and strangers alike, things got better.

In fact, we've come a long, long way since last year.

No, things aren't perfect. Jade's still having small seizures that disrupt her sleep, but we're working on getting rid of those, too. But dietary restrictions and some language delays aside, you'd think that she's just like any other almost-four-year-old. Halia's happy, healthy, and walking. Fawn and I are still married. We're eating better. We're spending more time together. In spite of Halia's best efforts, we're sleeping better. We're happier.  Things are much, much better.

The lesson? No matter how bad it gets (and it can get awfully bad) if you refuse to give up, it will get better. It will get better.

It will get better.


Clare said...

It warms my heart to know that things have gotten better for you. Here's hoping that they continue to get better and better for you, Fawn and your wonderful family.

Megan said...

Yes, it will.

Lauras Garden said...

When the goin gets tough, the tough get goin