In mid-February, I took Jade down to BC Childrens Hospital for an EEG. It was a little over three months since we started her on the ketogenic diet and it was time for a check-up.
We know that the ketogenic diet is helping to control her seizures, but the EEG showed that her sub-clinical seizures (the ones that stay in her brain and don't manifest themselves through jerking, staring, drops, etc.) were worse. It wasn't cause for concern, though, because she never had an EEG when her seizures were at their worst, the latest EEG may be worse relative to her previous EEG, but it's likely an improvement over where she was before she went on the diet.
The keto team decided that there was still room for improvement, so they wanted to increase Jade's ratio so that 95% of her calories come from fat (instead of 90%). Fawn and I were dreading the change but it went quite well.
And it helped.
Yesterday, for the first time since September, Jade had no seizures (that we could see). It's a little hard to believe. You almost come to expect the seizures the same way you might expect squirrels at your bird feeder or ravens in your garbage - you don't want them there, but there they are, making an appearance and causing trouble!
Today, she had a short little drop at breakfast but, overall, that's still an amazing improvement. Before the increase, she was having eight to twelve full drops a day.
Now, she's running around like a three-year-old should. She's using new words and word combination like crazy. She's a little chatter box! I don't care if she climbs up on the furniture, because I'm not worried that she's going to have a seizure and fall! If she falls it's because she doing normal, adventurous, three-year-old stuff!
We've come so far since those nightmarish days in October when it seemed like my daughter was disappearing inside her own shell.
We have our child back! Let's hope things stay that way!
(As you might expect, Fawn is pretty happy about it, too.)